Key movements in modern health care towards quality improvement, value-based health care, and integrating health and social care, all rely on routinely collecting and analyzing data generated directly by patients. New models of integrated care, such as Ontario Health Teams (OHTs), have a stated goal of achieving the Triple Aim (improved population health, reducing costs, improving the experience of care), and collecting patient-reported measures including patient-reported experience measures (PREMs), patient reported outcome measures (PROMs) and patient-reported inferred and social measures (PRISMs), could be an important way to track progress. PREMs, such as Ontario’s Health Care Experience Survey, involves collecting data about patients’ experience of care. PROMs include general quality of life measures (e.g. PROMIS), measures that focus on general physical and mental health, or on specific diseases or conditions (e.g. function post hip or knee replacement). PRISMs involve collecting data on patient’s social context e.g housing, income and employment. More recently, health organizations and policymakers have recognized that PRISMs are essential to provide context to PREMs and PROMs and to support patient-oriented care. PREMs, PROMs and PRISMs all require regular contact with patients, and it remains unclear what the best approach is to collecting this data, storing it, and analyzing it to support patient-oriented care. In this study, we will be conducting focus groups with primary care providers in OHTs as well as in-depth interviews with members of the public, to understand their views on collecting and using PREMs, PROMs and PRISMs data. We will examine current data needs, thoughts on collecting this data, and suggestions on the most appropriate methods.
This study will inform the implementation of these patient-reported measures in Ontario Health Teams. It will also inform the creation of standardized PROMs, PREMs and PRISMs surveys that would be used in nationally in Canada and in the global PaRIS project (hyperlink https://www.oecd.org/health/paris/) ,which is developing standardized patient indicator surveys to be used in participating Organisation for Economic Co-operation and Development (OECD) countries.